Cheshire
A north west mum with extremely rare cancer is fundraising after ‘devastating’ news
Daisy Jackson -
27th December 2021 A Cheshire mum who has been diagnosed with a rare type of cancer has launched a fundraising campaign to fund new treatment.
Rachel Coram, 27, is hoping to undergo immunotherapy treatment that could give her the ‘greatest timeframe’ to spend with her family.
The mum of one says she recently received the ‘devastating news’ that the drugs company won’t fund the treatment for her – leaving her to raise the £100,000 cost herself.
She has now launched a GoFund Me campaign, named Unique Sense of Tumour, which has already raised more than £60,000 at the time of writing.
Rachel, from Poynton, says that ‘time has started to tick a little faster’ in the year since she was diagnosed with Advanced Sclerosing Fibromixoid Sarcoma.
She was told that tumours had been found in her spine, breast, stomach, knee, neck, liver and lungs on Christmas Eve last year, Cheshire Live reports.
Rachel says she’s one of the only people in the UK with her type of Sarcoma cancer, meaning the treatment options available ‘haven’t changed in the last 40 years’.
In her fundraising campaign, she writes: “As most of you will know I’m Rach. I was diagnosed with Advanced Sclerosing Fibromixoid Sarcoma in Dec 2020.
“I never wanted a ‘diagnosis time frame’ as I have always tried to as positive as possible… it’s nearly been a year of different types of treatments and medicines and time has started to tick a little faster.
“Sarcomas are so rare that treatment options for them haven’t changed in the last 40 years! My oncologist has explained to me many times that the chemotherapy options available won’t be very successful for my type of Sarcoma, however there is the option to try Immunotherapy.
“He has had the discussion with the Royal Marsden and they have seen some positive results with this line of treatment.
“I however, recently received the devastating news that the drugs company will not fund immunotherapy as a treatment option for me.
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“They have said that there are alternative (cheaper) routes I could explore first… When we all know those options won’t be as successful or give me the greatest timeframe & I obviously want a lifetime and more with my little family. The treatment to self fund is £100,000.
“I would be so forever grateful for any kind of help or donation to try get us to this goal & allow me to try this treatment to give me as long as I can or you never know, maybe even cure me.
“Thank you, Rach, David and Indie x”
You can donate towards Rachel’s immunotherapy treatment at GoFundMe here.
Featured image: GoFundMe
