A Cheshire mum who has been diagnosed with a rare type of cancer has launched a fundraising campaign to fund new treatment.
Rachel Coram, 27, is hoping to undergo immunotherapy treatment that could give her the ‘greatest timeframe’ to spend with her family.
The mum of one says she recently received the ‘devastating news’ that the drugs company won’t fund the treatment for her – leaving her to raise the £100,000 cost herself.
She has now launched a GoFund Me campaign, named Unique Sense of Tumour, which has already raised more than £60,000 at the time of writing.
Rachel, from Poynton, says that ‘time has started to tick a little faster’ in the year since she was diagnosed with Advanced Sclerosing Fibromixoid Sarcoma.
She was told that tumours had been found in her spine, breast, stomach, knee, neck, liver and lungs on Christmas Eve last year, Cheshire Live reports.
Rachel says she’s one of the only people in the UK with her type of Sarcoma cancer, meaning the treatment options available ‘haven’t changed in the last 40 years’.
In her fundraising campaign, she writes: “As most of you will know I’m Rach. I was diagnosed with Advanced Sclerosing Fibromixoid Sarcoma in Dec 2020.
“I never wanted a ‘diagnosis time frame’ as I have always tried to as positive as possible… it’s nearly been a year of different types of treatments and medicines and time has started to tick a little faster.
“Sarcomas are so rare that treatment options for them haven’t changed in the last 40 years! My oncologist has explained to me many times that the chemotherapy options available won’t be very successful for my type of Sarcoma, however there is the option to try Immunotherapy.
“He has had the discussion with the Royal Marsden and they have seen some positive results with this line of treatment.
“I however, recently received the devastating news that the drugs company will not fund immunotherapy as a treatment option for me.
“They have said that there are alternative (cheaper) routes I could explore first… When we all know those options won’t be as successful or give me the greatest timeframe & I obviously want a lifetime and more with my little family. The treatment to self fund is £100,000.
“I would be so forever grateful for any kind of help or donation to try get us to this goal & allow me to try this treatment to give me as long as I can or you never know, maybe even cure me.
“Thank you, Rach, David and Indie x”
You can donate towards Rachel’s immunotherapy treatment at GoFundMe here.
Featured image: GoFundMe
Rare baby tree kangaroo born at Chester Zoo for the first time in nearly 100 years
A rare baby tree kangaroo has been born at Chester Zoo for the first time ever, and conservationists are hailing it a “real celebration”.
Just weeks after one of the world’s rarest chimpanzees was born at the UK’s biggest charity zoo, a tiny new endangered Goodfellow’s tree kangaroo has now been born for the first time in the zoo’s 91-year history, and the remarkable moment it peeked out from its mum Kitawa’s pouch has been caught on camera.
With only two zoos in the UK caring for the species, the birth of the new joey is being called “a real celebration” for Chester Zoo’s conservation breeding programme.
The programme is working to protect highly-threatened species from extinction.
Native to the mountainous rainforests of Papua New Guinea, and much smaller than the well-known Australian kangaroo species, the Goodfellow’s tree kangaroo is a tree-dwelling marsupial that uses its strong limbs for climbing and tails for balance.
Sadly though, the International Union for the Conservation of Nature (IUCN) has listed the species as endangered in the wild, as it’s under threat from hunting and habitat destruction.
The species has also lost more than half of its population in the last 30 years.
In a bid to discover more about the elusive creatures, conservationists at Chester Zoo have decided to document the growth of the joey using a special endoscope camera.
The camera will be carefully placed into Kitawa’s pouch every few weeks.
Experts say the data collected could help tree kangaroos, as well as other similar threatened species found in South East Asia, and their plight in the wild.
“Kitawa’s joey is the first Goodfellow’s tree kangaroo to ever be born at Chester Zoo in its 91 year-long history, so it’s a real celebratory moment for the team and our efforts to protect this highly endangered species,” said David White, Team Manager at Chester Zoo.
“The new baby will soon emerge from the pouch fully and begin hopping around and learning to climb trees, under the watchful eye of mum
“That’s when we’ll be able to determine if it’s male or female and give the youngster a fitting name.”
Giving a little more insight into the zoo’s conservation breeding programme and how important the joey’s birth is, David added: “With little being known about these shy and elusive creatures, small mammal experts at our conservation zoo are in a unique position to be able to capture and document the whole process around the development of Kitawa’s joey.
“These observations could be useful to help inform better conservation action for this wonderful, but sadly endangered species, in the wild.”
Featured Image – Chester Zoo
Bluedot festival reveals 2023 line-up, including Grace Jones, Roisin Murphy and Pavement
One of the country’s best-loved festivals has revealed its line-up for 2023, with Bluedot welcoming headline performances from the likes of Grace Jones and Roisin Murphy.
The popular music and science event, which takes place every July at the beautiful Jodrell Bank Observatory, will also include a UK exclusive from Pavement.
The multi-award-winning Bluedot has announced its first wave of artists for its 2023 festival, featuring Leftfield, Young Fathers, Django Django, Brett Morgen, Annie Mac, Chris Lintott, Maggie Aderin-Pocock, Tinariwen and many more.
This year’s massive line-up of global music talent will perform in front of the iconic backdrop of the 76-metre-wide Lovell Telescope, which last year was lit up with projections as a huge digital artwork for the first time.
Already announced are the BBC Concert Orchestra and Max Richter for Bluedot 2023, which will take place between 20 and 23 July.
Saturday will be headlined by lo-fi pioneers Pavement with their only UK performance of 2023. The group headlined Primavera last year before embarking on a completely sold-out UK tour that took in four nights at London’s Roundhouse.
The legendary Grace Jones will be taking to the Bluedot stage performing songs from her six-decade-long pop career, including hits like Slave To The Rhythm and Pull Up To The Bumper. Bluedot will be her only northern show of the summer.
Róisín Murphy will make history with her first-ever festival headline slot, calling on her lengthy career which began as one half of Moloko – the defacto queen of electropop has since delivered five solo albums, mesmerised audiences across clubland and is now set to open the weekend, with a cosmic dance party to usher in a new era following the success of her Roisin Machine album and tour.
Electronic music legends and multiple Mercury Prize-nominees Leftfield returned last month with the critically acclaimed This Is What We Do, featuring Lemn Sissay and Fontaines DC’s Grian Chatten. They’ll take a headline slot in Bluedot’s Orbit arena.
Also announced are Mercury prize winners Young Fathers, art rockers Django Django, feted post-punk four piece Dry Cleaning, Malian desert blues pioneers Tinariwen and experimental rockers Black Country, New Road, plus a Sunday Closing Party headlined by the iconic Annie Mac.
Nubya Garcia, Georgia, Max Cooper (3D AV), David Holmes, Beak>, Gwenno, Teleman, CMAT, Lava La Rue, Big Joanie, Skinny Pelembe, Scalping, Westerman, Belief, Pictish Trail, Divorce, Madmadmad and Radiophonic Workshop also join the first wave of the festival’s music line-up.
A huge part of Bluedot – which takes place at a UNESCO World Heritage Site – every year is its science programme, and this year that will include BBC Sky at Night’s Chris Lintott and Maggie Aderin-Pocock, Brainiac Live and renowned climate change researcher and author Mike Berners-Lee, whose How Bad Are Bananas? was named by The Independent as one of its ten recommended “best books to help you live more sustainably”.
UK Space Agency’s Libby Jackson OBE and The Open University’s Professor of Planetary and Space Science Monica Grady CBE will also return to the festival. The full science bill will be revealed in the coming weeks.
On the comedy and culture side of things, festival-goers can expect a David Bowie special edition of Adam Buxton’s Bug!, a screening and in-conversation with Moonage Daydream director, writer and producer Brett Morgan and an afternoon with White Rabbit Books featuring talks with Mogwai’s Stuart Braithwaite, Lias Saoudi of Fat White Family, and 90’s icon Miki Berenyi, whose book Fingers Crossed: How Music Saved Me From Success was named Rough Trade’s book of the year for 2022.
Bluedot is a family-friendly festival, and kids will be entertained by the likes of Our Kids Social Silent Disco, Pop-Up Puppet Cinema and the ever popular Jedi Lightsaber Training.
Food and drink in the VIP Village will be curated by Manchester-based food charity Eatwell, featuring some brands including Dishoom, Caroline Martins, Where the Light Gets In, Another Hand and more.
Festival director Ben Robinson said: “As we announce the line-up for the 6th edition of bluedot it’s with great pride in the team behind the show. From day one the festival has been ambitious in its programming and mission. Looking at the scale of iconic talent, breadth of genres & one off moments it really has matured into a very special vent. Thanks to everyone who’s continued to support the idea of bluedot, we look forward to gathering together again beneath the telescope with you all.”
bluedot was recently named Line-Up Of The Year at the UK Festival Awards, and Festival of the Year at the Live Awards, and has hosted headline performances from the likes of Bjork, Kraftwerk 3-D, New Order, The Chemical Brothers, Mogwai, Pixies, The Flaming Lips, Underworld and Jean-Michel Jarre, plus high-profile talks from Tim Peake, Brian Cox, Helen Sharman, Alice Roberts and Richard Dawkins and an array of groundbreaking arts and family experiences.
Tickets for bluedot 2023 go on sale 10am Friday 27th January.