A hydrocephalus awareness charity is calling on all UK healthcare providers to help raise awareness of “lifesaving” baby head measurement.
Harry’s Hydrocephalus Awareness Trust (Harry’s HAT) is an organisation that was set up to raise awareness of paediatric hydrocephalus – an incurable, and sadly life-threatening condition that affects one in every 770 babies.
Hydrocephalus is a build-up of excess fluid in the brain, which can put pressure on it to such an extent that it causes damage, and – if left untreated – can be fatal.
Harry’s HAT was set up in 2018 by founder and CEO, Caroline Coates, whose son Harry was first diagnosed with an arachnoid cyst when she was 36-weeks pregnant, that was later confirmed after he was born to have caused hydrocephalus.
Harry’s family were then told he would need a permanent shunt to drain the fluid from his brain at just eight weeks old if he was to survive.
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By the time Harry had reached his first birthday, the youngster had already endured four brain surgeries, and had spent lots of time in hospital, with frequent blue light trips into A&E – while his family found themselves isolated by their lack of knowledge on the condition, and often struggled to access the support and information they needed.
Harry was diagnosed with hydrocephalus shortly after he was born / Credit: Caroline Coates
Harry’s HAT is the only UK charity to focus solely on hydrocephalus and its impact, and the organisation works to make life better for children with hydrocephalus, as well as for those who love and care for them, all year round.
The organisation’s latest campaign, however, may be one of its most crucial yet.
The GET-A-HEAD Campaign is working to spread awareness and highlight the importance of the need for trained health care professionals to measure and record a baby’s head circumference in the first year of life, as this is one of the ways hydrocephalus can be diagnosed.
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Hoping to reach expectant and new parents across the UK, the campaign’s mission is to show why these measurements can be a crucial tool for spotting life-threatening conditions such as hydrocephalus, so that little ones showing signs of the condition will no longer be able to slip through the net.
The campaign was set up after a recent survey by pregnancy and parenting advice forum, Bounty, discovered that only 20% of new parents were aware that measuring a baby’s head can help identify hydrocephalus, and almost half (45%) didn’t know that their baby’s head should even be measured at birth.
Harry’s HAT says “this needs to change”, as research suggests that early diagnosis can help improve the outcome for a baby born with hydrocephalus.
“While there is no cure for the condition, there is treatment,” the charity urges.
The GET-A-HEAD Campaign is working to spread awareness of lifesaving baby head measurement / Credit: Harry’s HAT
Speaking on why the campaign means so much to her, and why it’s so crucial, Caroline Coates – founder and CEO of Harry’s HAT – said: “Harry is my fourth child and I have spent most of my working life working for social care charities, yet even I didn’t know why they measured a baby’s head. I just thought it was something health professionals did and I never considered that it could reveal a life-threatening condition.”
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“Far too many babies are still slipping through the net, and all too often we hear from parents who tell us that chances to spot their child’s hydrocephalus were missed.”
You can support the GET-A-HEAD Campaign and find out more about the work Harry’s HAT does on the charity’s website here.
Featured Image – Harry’s HAT
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Council calls on Manchester public to help bring hundreds of empty homes back into use
Emily Sergeant
Residents across Manchester are being called on to help bring hundreds of empty homes across the region back into use.
Since the beginning of this year, a major review has been underway around the city’s draft strategy for bringing empty homes back into use to help meet demand for affordable homes across the city, while also improving communities by tackling empty homes that can blight an area… but now, Manchester City Council needs your help.
Following a major public consultation, the Council is now acting on feedback to accelerate plans to bring as many long-term empty homes back into active use as possible.
Although the number of long-term empty homes in Manchester is near a historic low, with the Council having managed to reduce the number by more than half since 2013, there is still more work to be done.
“Every void property is a missed opportunity to provide a family a place to live, reduce homelessness, and lessen the burden on temporary accommodation,” the Council said in a statement.
The Council is calling on the Manchester public to help bring hundreds of empty homes back into use / Credit: Benjamin Elliott (via Unsplash)
So, how can residents help then? What do you need to do if you spot an empty home on a street nearby?
Well, the easiest way to report an empty home is to report the issue online here, or by emailing [email protected]. And then once that’s done, a team of dedicated empty homes officers will take up the case to find out who owns the property and work with the owner on a plan to bring the home back into use.
The vast number of empty homes are privately owned with complex histories, and there are some cases where an owner may have passed away.
While working collaboratively with housing providers, voluntary organisations and public services are also a key element of detecting potentially empty or ‘problematic’ homes to repurpose them.
Officers can also support, where required, if a communication or language poses a barrier to resolving an empty home issue.
Tailored approaches to different communities – where empty homes impact neighbourhoods in different ways – are also being considered, according to the Council.
“To think, if we could bring all empty homes back into use, then we could provide more homes for those on the housing register and take pressure off the whole housing system,” explained Cllr Gavin White, who is Manchester City Council’s executive member for housing and development.
“The potential of making empty homes a thing of the past is huge for Manchester families looking for a place to call home – and a significant part of tackling the housing crisis.”
Featured Image – Wikimedia Commons
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Urgent travel warning issued ahead of one of Manchester’s busiest event weekends of the year
Emily Sergeant
Greater Manchester is gearing up for what is set to be one of the busiest weekends of the year.
Manchester‘s biggest music festival, Parklife, returns to Heaton Park this weekend (Saturday 20 and Sunday 21 June), with tens of thousands of people expected to make the journey to see headliners Calvin Harris, Sammy Virji, Skepta, and Zara Larsson, as well as many other well-known music names… but that’s not all.
Over at the Etihad Stadium, Take That are set to perform a series of shows across the weekend, while the Etihad Campus will also host the Women’s Netball Final at Co-op Live from 3pm on Saturday afternoon.
The city will also welcome Lily Allen and the B52s across three nights at the AO Arena, and the Women’s Cricket World Cup will draw thousands to Emirates Old Trafford on 21 June, when South Africa take on India.
So, as you can see, we’ve got a jam-packed couple of days coming up.
📣 This weekend is expected to be one of the busiest in Manchester, with multiple events taking place across the city.
🚗 Public transport, roads and venues are likely to be extremely busy.
🕛 If you’re travelling anywhere this weekend, please plan ahead and allow extra time… pic.twitter.com/iqtmlSpAOR
In fact, it’s estimated that more than a quarter of a million people are expected to be travelling to the various events over the weekend, and of course, this means the roads and public transport will be significantly busier than usual.
Whether you’re one of the many fans or just making a regular journey, Transport for Greater Manchester (TfGM) is advising everyone to ‘plan ahead’, allow extra time for their journey, and avoid the busiest areas and times.
To prepare for the increase in travel, TfGM has confirmed that there will be more trams serving event venues, alongside extended tram operating times, to ensure everyone gets home safely.
For travel to and from Parklife, the specific Parklife travel ticket – which will be available on the Bee Network app – is valid on trams and buses across Greater Manchester, and this includes relevant shuttle buses operating to and from the city centre.
An urgent travel warning has been issued ahead of one of Manchester’s busiest event weekends of the year / Credit: Steve Turvey (Supplied) | TfGM
Throughout the weekend, extra staff and TravelSafe Support Officers will be out and about across the transport network to help passengers, and TfGM will be working closely with police and other partners to manage roads and the transport network around the clock.
“We’re expecting it to be very busy across the network, with more than a quarter of a million fans travelling to various sports and music events,” commented Danny Vaughn, who is the Chief Network Officer at TfGM.
“We will have as many staff as possible on the network, running as many services as we can to ensure that the Bee Network is here to help you get where you need to go.
“So, for everyone looking to get out and about, please plan ahead, check the Bee Network app for updates and have a safe journey.”
A dedicated travel page for this weekend’s event has been set up, so you can find out everything you need to know and get live updates on the Bee Network website here.
Emily Sergeant -
10th March 2023 
