A hydrocephalus awareness charity is calling on all UK healthcare providers to help raise awareness of “lifesaving” baby head measurement.
Harry’s Hydrocephalus Awareness Trust (Harry’s HAT) is an organisation that was set up to raise awareness of paediatric hydrocephalus – an incurable, and sadly life-threatening condition that affects one in every 770 babies.
Hydrocephalus is a build-up of excess fluid in the brain, which can put pressure on it to such an extent that it causes damage, and – if left untreated – can be fatal.
Harry’s HAT was set up in 2018 by founder and CEO, Caroline Coates, whose son Harry was first diagnosed with an arachnoid cyst when she was 36-weeks pregnant, that was later confirmed after he was born to have caused hydrocephalus.
Harry’s family were then told he would need a permanent shunt to drain the fluid from his brain at just eight weeks old if he was to survive.
ADVERTISEMENT
By the time Harry had reached his first birthday, the youngster had already endured four brain surgeries, and had spent lots of time in hospital, with frequent blue light trips into A&E – while his family found themselves isolated by their lack of knowledge on the condition, and often struggled to access the support and information they needed.
Harry was diagnosed with hydrocephalus shortly after he was born / Credit: Caroline Coates
Harry’s HAT is the only UK charity to focus solely on hydrocephalus and its impact, and the organisation works to make life better for children with hydrocephalus, as well as for those who love and care for them, all year round.
The organisation’s latest campaign, however, may be one of its most crucial yet.
The GET-A-HEAD Campaign is working to spread awareness and highlight the importance of the need for trained health care professionals to measure and record a baby’s head circumference in the first year of life, as this is one of the ways hydrocephalus can be diagnosed.
ADVERTISEMENT
Hoping to reach expectant and new parents across the UK, the campaign’s mission is to show why these measurements can be a crucial tool for spotting life-threatening conditions such as hydrocephalus, so that little ones showing signs of the condition will no longer be able to slip through the net.
The campaign was set up after a recent survey by pregnancy and parenting advice forum, Bounty, discovered that only 20% of new parents were aware that measuring a baby’s head can help identify hydrocephalus, and almost half (45%) didn’t know that their baby’s head should even be measured at birth.
Harry’s HAT says “this needs to change”, as research suggests that early diagnosis can help improve the outcome for a baby born with hydrocephalus.
“While there is no cure for the condition, there is treatment,” the charity urges.
The GET-A-HEAD Campaign is working to spread awareness of lifesaving baby head measurement / Credit: Harry’s HAT
Speaking on why the campaign means so much to her, and why it’s so crucial, Caroline Coates – founder and CEO of Harry’s HAT – said: “Harry is my fourth child and I have spent most of my working life working for social care charities, yet even I didn’t know why they measured a baby’s head. I just thought it was something health professionals did and I never considered that it could reveal a life-threatening condition.”
ADVERTISEMENT
“Far too many babies are still slipping through the net, and all too often we hear from parents who tell us that chances to spot their child’s hydrocephalus were missed.”
You can support the GET-A-HEAD Campaign and find out more about the work Harry’s HAT does on the charity’s website here.
Featured Image – Harry’s HAT
News
Trafford drugs ring sentenced to over a quarter of a century behind bars
Danny Jones
A local drug ring has been hit hard this month after four members of an organised crime group were sentenced to a combined quarter of a century in prison.
The quartet of criminals have been slapped with roughly 25 years following a series of arrests over the 18 months or so, with the first being made back in August 2024.
Stopfordian resident Calvin Cousins was taken into custody, charged and ultimately convicted of conspiracy to supply class B and class A, receiving a seven-year sentence – but his isn’t even the longest stint behind bars handed down by Manchester Minshull Street Crown Court last week.
Following a conclusive hearing on Friday, 3 July, Germane Tarrant from Salford was also convicted of conspiracy to supply class B and class A drugs, for which he received nine years and 10 months.
Meanwhile, fellow Salfordian Letitia Sandys was convicted of participating in the activities involving organised crime by providing legitimacy to drug supply activity, collecting drugs from conspirators, and assisting with anti-surveillance measures, as well as disposal of said drugs and paraphernalia.
Fourth and finally, Nicholas Griffin of Clifford Avenue was also convicted of conspiracy to supply class B and conspiracy to supply class A after a two-week trial this past January.
The pair were given 27 months and six and a half years, respectively.
As per a Greater Manchester Police (GMP) press release, this recent result is a product of the Trafford Challenger unit’s exhaustive investigation across the Sale, Altrincham and Timperley area between August ’24 and this past July.
Cousins, in particular, was arrested twice during that period, with phone analysis and surveillance tactics ultimately ending in over £25,000’s worth of cannabis and cocaine being recovered among other contraband.
This latest progress made by GMP comes amid a series of successes within various boroughs like Trafford, Salford, Stockport and more, with local authorities continuing to crack down on criminal organisations of various sizes.
The SK Challenger Team are doing important work, too.
GMP Detective Sergeant Samuel Barr, from the Trafford Challenger team, said: “The presence of organised crime groups (OCGs) in our communities undermines public safety and trust.
“We are committed to disrupting and dismantling OCGs to protect our communities and keep people safe from the harms associated with organised crime.
“I hope today sends a clear message that we will not tolerate organised crime and the exploitation of vulnerable people by those criminals. We will not stop until we have brought them to justice.
“If you’re concerned about criminal activity in your area, please reach out to us; we rely on information from the public to assist with our enquiries.”
As always, they are urging those with information they feel may be pertinent to file a report with the police on 101, via the LiveChat function on the GMP website, or by contacting Crimestoppers anonymously on 0800 555 111.
ITV to be bought out by Sky in transformational British broadcasting deal worth £1.6 billion
Danny Jones
In a watershed moment for British broadcasting, Sky has reached a transformational agreement worth more than £1.6 billion to buy out ITV in a landmark takeover deal.
With Sky already owned by US telecommunications corporation Comcast, this is set to be one of the biggest shakeups in TV and streaming for some time.
Talks actually started last November, but the process to complete a buyout like this has obviously taken a significant amount of time and money already.
It’s also worth noting that the deal is still pending full approval from the relevant regulators; nevertheless, it’s fair to say that it could change the face of the British media giants – who are based here in Greater Manchester over at MediaCity – but might signal a significant overhaul of our media landscape.
The Sky Group have assured there will be no immediate change to popular shows and will not be put behind a paywall at present (for now, anyway), with ITV still under a free-to-air service until 2034 as part of its public licensing contract.
Aquisitons/mergers of this size like this don’t come around very often, at least not across this side of the pond, with the growing Disney’s growing multinational monopolisation being one of the biggest examples of conglomerates mopping up major networks and huge brands over the past decade.
Writing in a statement, Sky said: “The UK media market is undergoing a profound and rapid transformation, and as competition for audiences intensifies, scale matters more than ever in order to compete with global streaming giants and YouTube in the UK.
“Viewers will continue to enjoy the shows they know and love, such as Coronation Street, Emmerdale, Love Island, I’m a Celebrity… Get Me Out of Here!, This Morning, Loose Women, Lorraine and News at Ten – alongside major live sporting events.”
That lattermost example feels particularly poignant at the moment, as this also means that the likes of ITV’s impressive World Cup coverage will come under the Sky umbrella in the near future.
ITV agrees sale of media and entertainment business to Sky for up to £1.6bnhttps://t.co/UtgO9REejy
It’s being seen as an ambitious attempt to shake up traditional terrestrial telly and digital platforms, with the ‘old guard’, as it were, having to move forward and fast to keep up with the mercurial market becoming evermore dominated by streaming services.
Of course, there are plenty raising questions and concerns over yet another domestic institution becoming deeper and deeper entwined with big American business; on the other hand, former ITV chairman Sir Peter Bazalgette, who still owns shares, says the deal was “essential” for its survival.
ITV will also receive £1.2bn in cash and Sky’s Love Productions business in return for ownership of their media and entertainment arm, whose shows include the Great British Bake Off.
Moving forward, ITV will also get a further £200m in 2028 if they meet revenue targets when it comes to advertising, with Sky promising to spend over £2.1bn on content from ITV Studios over a five-year period. You can read the full update from ITV right HERE.
Emily Sergeant -
10th March 2023 
