A hydrocephalus awareness charity is calling on all UK healthcare providers to help raise awareness of “lifesaving” baby head measurement.
Harry’s Hydrocephalus Awareness Trust (Harry’s HAT) is an organisation that was set up to raise awareness of paediatric hydrocephalus – an incurable, and sadly life-threatening condition that affects one in every 770 babies.
Hydrocephalus is a build-up of excess fluid in the brain, which can put pressure on it to such an extent that it causes damage, and – if left untreated – can be fatal.
Harry’s HAT was set up in 2018 by founder and CEO, Caroline Coates, whose son Harry was first diagnosed with an arachnoid cyst when she was 36-weeks pregnant, that was later confirmed after he was born to have caused hydrocephalus.
Harry’s family were then told he would need a permanent shunt to drain the fluid from his brain at just eight weeks old if he was to survive.
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By the time Harry had reached his first birthday, the youngster had already endured four brain surgeries, and had spent lots of time in hospital, with frequent blue light trips into A&E – while his family found themselves isolated by their lack of knowledge on the condition, and often struggled to access the support and information they needed.
Harry was diagnosed with hydrocephalus shortly after he was born / Credit: Caroline Coates
Harry’s HAT is the only UK charity to focus solely on hydrocephalus and its impact, and the organisation works to make life better for children with hydrocephalus, as well as for those who love and care for them, all year round.
The organisation’s latest campaign, however, may be one of its most crucial yet.
The GET-A-HEAD Campaign is working to spread awareness and highlight the importance of the need for trained health care professionals to measure and record a baby’s head circumference in the first year of life, as this is one of the ways hydrocephalus can be diagnosed.
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Hoping to reach expectant and new parents across the UK, the campaign’s mission is to show why these measurements can be a crucial tool for spotting life-threatening conditions such as hydrocephalus, so that little ones showing signs of the condition will no longer be able to slip through the net.
The campaign was set up after a recent survey by pregnancy and parenting advice forum, Bounty, discovered that only 20% of new parents were aware that measuring a baby’s head can help identify hydrocephalus, and almost half (45%) didn’t know that their baby’s head should even be measured at birth.
Harry’s HAT says “this needs to change”, as research suggests that early diagnosis can help improve the outcome for a baby born with hydrocephalus.
“While there is no cure for the condition, there is treatment,” the charity urges.
The GET-A-HEAD Campaign is working to spread awareness of lifesaving baby head measurement / Credit: Harry’s HAT
Speaking on why the campaign means so much to her, and why it’s so crucial, Caroline Coates – founder and CEO of Harry’s HAT – said: “Harry is my fourth child and I have spent most of my working life working for social care charities, yet even I didn’t know why they measured a baby’s head. I just thought it was something health professionals did and I never considered that it could reveal a life-threatening condition.”
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“Far too many babies are still slipping through the net, and all too often we hear from parents who tell us that chances to spot their child’s hydrocephalus were missed.”
You can support the GET-A-HEAD Campaign and find out more about the work Harry’s HAT does on the charity’s website here.
Featured Image – Harry’s HAT
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Today is your last day to register to vote in Greater Manchester’s local and mayoral elections
Emily Sergeant
Today is your last day to register to vote in Greater Manchester’s local and mayoral elections, as the deadline ends at midnight tonight.
With less than a month to go until the big election day arrives, residents across the Greater Manchester region are being urged to make sure they’re registered to vote and have their voter photo ID ready, so that they’re able to head to the polls and have their say on who makes the important decisions that affect them.
In order to vote in the local and mayoral elections on Thursday 2 May, Greater Manchester residents must register before midnight tonight (Tuesday 16 April).
— Greater Manchester Combined Authority (@greatermcr) April 14, 2024
This year, residents across Greater Manchester will be voting in two elections, with residents in Salford voting in three elections.
These are for the Mayor of Greater Manchester Combined Authority – who is a major figure in the political life of the city-region, with unique powers and responsibilities – and for local Councillors, who are elected to represent their local area and residents, and get to contribute to the development of local policies too.
On top of this, Salford residents will also be voting for The Salford City Mayor too, who is Salford’s political, strategic, and community leader, and has overall responsibility for the delivery of all council services.
In case you aren’t quite up to speed, nominations for Mayor candidates closed on Friday 5 April, and that means there’s a total of six people standing in the third election for the Mayor of Greater Manchester – with current Mayor, Labour and Co-operative’s, Andy Burnham, being one of them.
The candidates nominated to stand in the election for the Mayor for Greater Manchester Combined Authority are:
Jake Austin (Liberal Democrats)
Dan Barker (Reform UK)
Nick Buckley (Independent)
Andy Burnham (Labour and Co-operative)
Laura Evans (The Conservative Party
Hannah Kathrine Spencer (Green Party)
Today is your last day to register to vote in Greater Manchester’s local and mayoral elections / Credit: Manchester City Council | gov.uk
As always, there are different ways to vote in the elections next month.
You can either do so at your local polling station, by post, or by proxy – which means appointing someone to vote on your behalf – with the deadline to apply for a postal vote in these elections being 5pm this Wednesday (17 April), and the deadline for applying for a proxy vote being 5pm on Wednesday 24 April.
As mentioned, residents will need to show a valid form of photo ID at the polling station, such as a passport, driving licence, some types of bus pass or proof of age card, or a free Voter Authority Certificate.
According to GMCA, every registered voter in Greater Manchester will have started to receive an election booklet explaining more about the election, and election addresses prepared by each of the candidates, in the post from yesterday (Monday 15 April), as required by law.
More information about the elections taking place in Greater Manchester, including information about voter ID, registering to vote, and applying for a postal or proxy vote, can be found at www.gmelects.org.uk.
Featured Image – gov.uk
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Manchester United, GMP, and the Council is clamping down on ‘illegal’ matchday parking at Old Trafford
Emily Sergeant
Manchester United has joined forces with police and the local Council to take action on a number of offences outside Old Trafford on match days.
This includes “illegal” parking, street trading, and so much more.
The football club teamed up with its partners, Greater Manchester Police (GMP) and Trafford Council, for another day of action to clampdown on a wide range of offences taking place outside its home stadium ahead of the team’s hotly-anticipated Premier League match against fierce local rivals, Liverpool, on Sunday 7 April.
Police and officers from the Council’s Regulatory Services Team tackled a number of issues on the day of action.
These included what was described as ‘rogue trading’ and ‘illegal street trading’, taxis illegally plying for hire or causing obstructions, and illegal parking, as well as the monitoring of food hygiene at food stands outside the stadium.
⛔ Old Trafford crackdown: illegal traders shown a red card
Working with @GMPstretford and @ManUtd, we took action last weekend ahead of United’s game versus Liverpool to stop:
❌ rogue street traders ❌ illegal taxis ❌ illegal parking
As part of this particular day of action – which followed a similar event outside Old Trafford on 24 February, ahead of United’s game against Fulham – Council officers and GMP staff spoke to more than 100 licensed taxis and hackney carriage drivers about illegal parking and illegally plying for hire, and 19 Fixed Penalty Notices were handed out to vehicles parked illegally on a clearway outside the ground.
Licensing and trading standards officers, along with Manchester United’s brand protection team, also spoke with all of the licensed pitches and street traders/peddlers outside the stadium, and a total of 73 products were removed for breaking rules under the Trade Marks Act.
Further legal action is set to be taken against some traders who were committing offences and were obstructive towards Council officers who were trying to carry out their tasks, according to Trafford Council.
Manchester United, GMP, and Council to clampdown on ‘illegal’ matchday parking at Old Trafford / Credit: GMP Stretford
“Our partnership work with Trafford Council is vital in being able to tackle illegal street trading and parking issues,” a spokesperson for GMP said in a statement following the day of action.
“We will continue to work with our partners to ensure a safe matchday experience, both inside and out of the stadium, for all those attending the ground.”
Jim Liggett, who is the Director of Operations at Manchester United, also explained that the club was “pleased” to have been able to join forces with Trafford Council and GMP on their day of action to clampdown on “illegal behaviour” outside Old Trafford.
He added: “We remain committed to supporting the local authorities as we seek to collectively reduce any impact matches at Old Trafford may have on the community around the stadium.”
Emily Sergeant -
10th March 2023 
