A hydrocephalus awareness charity is calling on all UK healthcare providers to help raise awareness of “lifesaving” baby head measurement.
Harry’s Hydrocephalus Awareness Trust (Harry’s HAT) is an organisation that was set up to raise awareness of paediatric hydrocephalus – an incurable, and sadly life-threatening condition that affects one in every 770 babies.
Hydrocephalus is a build-up of excess fluid in the brain, which can put pressure on it to such an extent that it causes damage, and – if left untreated – can be fatal.
Harry’s HAT was set up in 2018 by founder and CEO, Caroline Coates, whose son Harry was first diagnosed with an arachnoid cyst when she was 36-weeks pregnant, that was later confirmed after he was born to have caused hydrocephalus.
Harry’s family were then told he would need a permanent shunt to drain the fluid from his brain at just eight weeks old if he was to survive.
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By the time Harry had reached his first birthday, the youngster had already endured four brain surgeries, and had spent lots of time in hospital, with frequent blue light trips into A&E – while his family found themselves isolated by their lack of knowledge on the condition, and often struggled to access the support and information they needed.
Harry was diagnosed with hydrocephalus shortly after he was born / Credit: Caroline Coates
Harry’s HAT is the only UK charity to focus solely on hydrocephalus and its impact, and the organisation works to make life better for children with hydrocephalus, as well as for those who love and care for them, all year round.
The organisation’s latest campaign, however, may be one of its most crucial yet.
The GET-A-HEAD Campaign is working to spread awareness and highlight the importance of the need for trained health care professionals to measure and record a baby’s head circumference in the first year of life, as this is one of the ways hydrocephalus can be diagnosed.
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Hoping to reach expectant and new parents across the UK, the campaign’s mission is to show why these measurements can be a crucial tool for spotting life-threatening conditions such as hydrocephalus, so that little ones showing signs of the condition will no longer be able to slip through the net.
The campaign was set up after a recent survey by pregnancy and parenting advice forum, Bounty, discovered that only 20% of new parents were aware that measuring a baby’s head can help identify hydrocephalus, and almost half (45%) didn’t know that their baby’s head should even be measured at birth.
Harry’s HAT says “this needs to change”, as research suggests that early diagnosis can help improve the outcome for a baby born with hydrocephalus.
“While there is no cure for the condition, there is treatment,” the charity urges.
The GET-A-HEAD Campaign is working to spread awareness of lifesaving baby head measurement / Credit: Harry’s HAT
Speaking on why the campaign means so much to her, and why it’s so crucial, Caroline Coates – founder and CEO of Harry’s HAT – said: “Harry is my fourth child and I have spent most of my working life working for social care charities, yet even I didn’t know why they measured a baby’s head. I just thought it was something health professionals did and I never considered that it could reveal a life-threatening condition.”
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“Far too many babies are still slipping through the net, and all too often we hear from parents who tell us that chances to spot their child’s hydrocephalus were missed.”
You can support the GET-A-HEAD Campaign and find out more about the work Harry’s HAT does on the charity’s website here.
Featured Image – Harry’s HAT
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Pat Regan at the Fairfield Social Club – a brilliantly unhinged evening of standup comedy
Clementine Hall
There’s a particular kind of chaos that only Pat Regan can deliver, and the recently re-recognised Fairfield Social Club got the full force of it last night.
Making his Manchester debut as part of the ‘A Lovely Time’ series at the equally as lovely Fairfield Social Club, the New York comic, writer, and podcast host arrived with the energy of someone who had already lived through three emotional breakdowns before breakfast and somehow still had the worst to come.
Known for his work on HBO’s Hacks and the cult-favourite podcast Seek Treatment with fellow comic Catherine Cohen, Regan’s stand-up feels less like your traditional comedy set and more like being trapped in the world’s funniest group chat.
The perfectly intimate room beneath Fairfield’s railway arches was packed with adoring fans who were immediately on side as Regan launched into stories about traumatic trips to Paris, Grindr dates, massage tables and having crushes at the gym.
The audience was in the palm of his slightly sweaty hands (don’t worry, he’ll be fine with me saying so), laughing at every awkward punchline and self-deprecating anecdote.
The material is nothing groundbreaking, but this is what makes it so deeply hilarious; never before has shopping for the perfect pair of jeans been so serious and unserious at the same time.
There was laughter rolling through the venue for virtually the entire set, and after an hour of never-ending quips and jokes, we were left wanting more.
And the best part is, it won’t be long until we get more from this place, and it’s no wonder they’re starting to get the hosting plaudits they deserve.
It’s safe to say Fairfield Social Club has become one of Manchester’s most exciting homes for alternative comedy, and this felt like exactly the sort of booking that justifies its growing reputation.
By the time Regan left the stage, the audience looked equal parts exhausted and delighted. An absolutely classy evening indeed.
Find out about what else is on at the Fairfield Social Club HERE.
First-ever JD Wetherspoon pub to open at Manchester Airport
Danny Jones
In news that we feel many Mancs and travellers all-round have been waiting on for a long time, the well-known British chain, JD Wetherspoon, will be opening its first-ever pub at Manchester Airport.
That’s right: soon that first airport pint of the holiday could actually be a relatively cheap one.
While Wetherspoons are no strangers to popping up in terminals across the UK and Ireland, they’ve never done so here in Manchester despite having three, yes THREE, in Gatwick alone.
Not for much longer, though, as soon T2 will be lending more than 3,000 square feet of its prime leisure and retail real estate to a new Greater Manchester ‘Spoons’.
Posting on social media, the airport wrote: “Wetherspoon comes to Manchester Airport this September! The pub will be located in the Terminal 2 Departures lounge and will have more than 300 seats.
“This will become the final major food and drink venue to open its doors as part of our decade-long £1.3bn transformation of Terminal 2. It will be named ‘The Belle Vue’, in a nod to Manchester’s historic showground [now a sports complex and leisure hub].
“It was a focal point for social life in the city from the Victorian period up until 2020, when the final event was held at Belle Vue stadium. The design of the pub is inspired by the history of Belle Vue and the sporting culture of the North West of England. We look forward to welcoming you all in September!”
While a lot of money has been pumped into T2’s refurb as a whole over the past few years, it remains unclear just how much this particular new addition will cost; we do know that great sums were set aside for the launch of the Great Northern Market last year.
The inaugural Manchester Airport Spoons is just the latest in a series of major renovations.
As mentioned, the company already operate several up and down the country – 10 airport pubs, to be specific – but this will be the first in the North West.
Speaking on the news, JD Wetherspoon chief executive John Hutson said in a statement: “We are looking forward to opening at Manchester Airport. We believe our new pub will prove popular with travellers of all ages and be an asset to the new terminal.”
With Manchester Airport adding a dozen new routes to its roster this summer, you can expect to see even more people flying in and out than ever – no doubt having already polished off a cut-price pint or two beforehand.