A hydrocephalus awareness charity is calling on all UK healthcare providers to help raise awareness of “lifesaving” baby head measurement.
Harry’s Hydrocephalus Awareness Trust (Harry’s HAT) is an organisation that was set up to raise awareness of paediatric hydrocephalus – an incurable, and sadly life-threatening condition that affects one in every 770 babies.
Hydrocephalus is a build-up of excess fluid in the brain, which can put pressure on it to such an extent that it causes damage, and – if left untreated – can be fatal.
Harry’s HAT was set up in 2018 by founder and CEO, Caroline Coates, whose son Harry was first diagnosed with an arachnoid cyst when she was 36-weeks pregnant, that was later confirmed after he was born to have caused hydrocephalus.
Harry’s family were then told he would need a permanent shunt to drain the fluid from his brain at just eight weeks old if he was to survive.
ADVERTISEMENT
By the time Harry had reached his first birthday, the youngster had already endured four brain surgeries, and had spent lots of time in hospital, with frequent blue light trips into A&E – while his family found themselves isolated by their lack of knowledge on the condition, and often struggled to access the support and information they needed.
Harry was diagnosed with hydrocephalus shortly after he was born / Credit: Caroline Coates
Harry’s HAT is the only UK charity to focus solely on hydrocephalus and its impact, and the organisation works to make life better for children with hydrocephalus, as well as for those who love and care for them, all year round.
The organisation’s latest campaign, however, may be one of its most crucial yet.
The GET-A-HEAD Campaign is working to spread awareness and highlight the importance of the need for trained health care professionals to measure and record a baby’s head circumference in the first year of life, as this is one of the ways hydrocephalus can be diagnosed.
ADVERTISEMENT
Hoping to reach expectant and new parents across the UK, the campaign’s mission is to show why these measurements can be a crucial tool for spotting life-threatening conditions such as hydrocephalus, so that little ones showing signs of the condition will no longer be able to slip through the net.
The campaign was set up after a recent survey by pregnancy and parenting advice forum, Bounty, discovered that only 20% of new parents were aware that measuring a baby’s head can help identify hydrocephalus, and almost half (45%) didn’t know that their baby’s head should even be measured at birth.
Harry’s HAT says “this needs to change”, as research suggests that early diagnosis can help improve the outcome for a baby born with hydrocephalus.
“While there is no cure for the condition, there is treatment,” the charity urges.
The GET-A-HEAD Campaign is working to spread awareness of lifesaving baby head measurement / Credit: Harry’s HAT
Speaking on why the campaign means so much to her, and why it’s so crucial, Caroline Coates – founder and CEO of Harry’s HAT – said: “Harry is my fourth child and I have spent most of my working life working for social care charities, yet even I didn’t know why they measured a baby’s head. I just thought it was something health professionals did and I never considered that it could reveal a life-threatening condition.”
ADVERTISEMENT
“Far too many babies are still slipping through the net, and all too often we hear from parents who tell us that chances to spot their child’s hydrocephalus were missed.”
You can support the GET-A-HEAD Campaign and find out more about the work Harry’s HAT does on the charity’s website here.
Featured Image – Harry’s HAT
News
Manchester City win watershed case against Premier League over sponsorship rules
Danny Jones
Manchester City have landed an early blow in what is set to be a long and arduous series of legal proceedings over the coming months as they have won a case against the Premier League over their rules around sponsorship and related party transactions.
The current English champions, who have won a record four Premier League titles in a row, launched legal action against the division back in June after claiming that their restrictions around Associated Party Transactions (APT) rules and sponsorships were unfair and unlawful.
Now, as it turns out, an independent panel of three retired judges ultimately concluded that the rules were unlawful and, at least in part, contrary to the Competition Act 1998.
The details of the case are obviously numerous and complex but, in short, it has been found that Man City were unfairly blocked from moving forward with two huge sponsorship deals earlier this year.
BREAKING: Man City has won their legal challenge against the Premier League's Associated Party Transaction rules, which surrounds commercial deals between clubs and their related companies 🚨 pic.twitter.com/ZevrXvOOhd
Although the outcome has been somewhat debated by the league itself, it was decided that the imposed regulations were unfair and “discriminatory in how they operate, because they deliberately excluded shareholder loans.”
Issuing a statement following the decision, the Premier League said they “welcome the Tribunal’s findings, which endorsed the overall objectives, framework and decision-making of the APT system”, adding that it also “upheld the need for the APT system as a whole and rejected the majority of City’s challenges” while reiterating that the rules are necessary for their “financial controls to be effective”.
They went on to add that “the decision represents an important and detailed assessment of the APT Rules, which ensure clubs are not able to benefit from commercial deals or reductions in costs that are not at Fair Market Value (FMV) by virtue of relationships with Associated Parties.”
Meanwhile, the City Football Group responded to the news in a series of bullet points, insisting that the “Premier League was found to have abused its dominant position, […] had reached the decisions in a procedurally unfair manner” and that they will now have to “restate the fair market value of two transactions entered into by the Club.”
Safe to say people have noted quite a distinct difference in tone when it comes to statements from the two parties regarding associated parties and their transactions with clubs but, nevertheless, it’s a victory for the Manc club could have a huge knock-on effect regarding how much teams can spend in the future.
Quite a contrast in wording between the statements from Man City (left) and the Premier League (right) on findings related to Associated Party Transaction rules. pic.twitter.com/H3QkHlwMGM
The Premier League have also reassured that two particular aspects of the existing rules that didn’t fully comply with the Competition Act will be rectified promptly and will be “conducting a process that can allow the league and clubs to enact those specific changes quickly and effectively”.
Not only does this mean that CFG is likely to restart conversations with the two blocked parties – one being the Etihad Group and another with a bank based in Abu Dhabi – but that other clubs could now potentially look into further lucrative sponsorship deals, although ‘fair market value’ will still be assessed.
You can read page 164 of the document which summarises the full Tribunal HERE.
Meanwhile, the still outstanding case against Man City over their 115 charges regarding FFP breaches has now begun, though a decision is still a ways off.
Date set for Manchester’s move to London-style ‘touch in, touch out’ public transport system
Emily Sergeant
The date for Manchester’s switch to a London-style ‘touch in, touch out’ public transport system has officially been set.
With just three months to go until all buses in Greater Manchester are back under local control, Transport for Greater Manchester (TfGM) has now set the date for the introduction of capped contactless payments on the Bee Network in a bid to “support multi-modal travel”, and it’s already being described as a “huge step forward”.
TfGM believes contactless pay-as-you-go systems on buses and trams will make travel easier overall, as it’ll guarantee passengers pay the right fare for their journey.
But how exactly will it work?
Coming soon, contactless Pay As You Go on #BeeNetwork buses. Travel seamlessly between bus and tram, with fares automatically worked out for you.
🟡 Pay no more than the daily or weekly cap for your journeys (adult fares) 🟡 Unlimited daily travel by bus for £5 a day pic.twitter.com/dOa8o96vqA
Well, similar to how customers currently travel on the Metrolink, passengers will be able to use their bank card or smart payment device to touch in on all Bee Network bus services, and rest assured knowing that they will only be charged the lowest fare up to the daily cap of £5, or the new weekly cap of £20.
Under the new system, people travelling by Bee Network bus will simply ‘touch on’ as they board the service.
Not only that, but passengers will also be able to travel across both Metrolink and Bee Network bus services at the same time, and only be charged a single multi-modal fare, instead of having to plan or buy tickets in advance – which is similar to travelling in London.
Passengers who use both Bee Network bus and Metrolink can use pay as you go for unlimited all-day travel across Greater Manchester, which is expected to cost a maximum of £9.50, or £7.80 if you start your journey after 9:30am or at weekends.
Journeys will be cheaper if travelling across fewer Metrolink zones.
Manchester is set to move to London-style ‘touch in, touch out’ public transport payment system / Credit: TfGM
For the time being, TfGM has confirmed that pay as you go travel will operate with adult fares only, but this may be rolled-out to others in the future.
“Pay as you go will be launching across Bee Network buses to build on the system that has been in place on the Metrolink since 2019,” explained Greater Manchester Mayor Andy Burnham.
“This is a massive step forward in terms of delivering a London-style transport network for the people of Greater Manchester, putting our region on par with not only the capital, but also major cities across the world that offer seamless integrated travel by public transport.”
Mr Burnham also said it’ll be “affordable and easier to pay for”, and will ultimately “take the worry out of choosing the right ticket”.
Emily Sergeant -
10th March 2023 
