A hydrocephalus awareness charity is calling on all UK healthcare providers to help raise awareness of “lifesaving” baby head measurement.
Harry’s Hydrocephalus Awareness Trust (Harry’s HAT) is an organisation that was set up to raise awareness of paediatric hydrocephalus – an incurable, and sadly life-threatening condition that affects one in every 770 babies.
Hydrocephalus is a build-up of excess fluid in the brain, which can put pressure on it to such an extent that it causes damage, and – if left untreated – can be fatal.
Harry’s HAT was set up in 2018 by founder and CEO, Caroline Coates, whose son Harry was first diagnosed with an arachnoid cyst when she was 36-weeks pregnant, that was later confirmed after he was born to have caused hydrocephalus.
Harry’s family were then told he would need a permanent shunt to drain the fluid from his brain at just eight weeks old if he was to survive.
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By the time Harry had reached his first birthday, the youngster had already endured four brain surgeries, and had spent lots of time in hospital, with frequent blue light trips into A&E – while his family found themselves isolated by their lack of knowledge on the condition, and often struggled to access the support and information they needed.
Harry was diagnosed with hydrocephalus shortly after he was born / Credit: Caroline Coates
Harry’s HAT is the only UK charity to focus solely on hydrocephalus and its impact, and the organisation works to make life better for children with hydrocephalus, as well as for those who love and care for them, all year round.
The organisation’s latest campaign, however, may be one of its most crucial yet.
The GET-A-HEAD Campaign is working to spread awareness and highlight the importance of the need for trained health care professionals to measure and record a baby’s head circumference in the first year of life, as this is one of the ways hydrocephalus can be diagnosed.
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Hoping to reach expectant and new parents across the UK, the campaign’s mission is to show why these measurements can be a crucial tool for spotting life-threatening conditions such as hydrocephalus, so that little ones showing signs of the condition will no longer be able to slip through the net.
The campaign was set up after a recent survey by pregnancy and parenting advice forum, Bounty, discovered that only 20% of new parents were aware that measuring a baby’s head can help identify hydrocephalus, and almost half (45%) didn’t know that their baby’s head should even be measured at birth.
Harry’s HAT says “this needs to change”, as research suggests that early diagnosis can help improve the outcome for a baby born with hydrocephalus.
“While there is no cure for the condition, there is treatment,” the charity urges.
The GET-A-HEAD Campaign is working to spread awareness of lifesaving baby head measurement / Credit: Harry’s HAT
Speaking on why the campaign means so much to her, and why it’s so crucial, Caroline Coates – founder and CEO of Harry’s HAT – said: “Harry is my fourth child and I have spent most of my working life working for social care charities, yet even I didn’t know why they measured a baby’s head. I just thought it was something health professionals did and I never considered that it could reveal a life-threatening condition.”
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“Far too many babies are still slipping through the net, and all too often we hear from parents who tell us that chances to spot their child’s hydrocephalus were missed.”
You can support the GET-A-HEAD Campaign and find out more about the work Harry’s HAT does on the charity’s website here.
Featured Image – Harry’s HAT
News
Lisa Riley shares pictures with Peter Kay following heckler controversy
Danny Jones
Lisa Riley has dispelled any lingering suggestions of a rift between her and Peter Kay following a recent heckler exchange after sharing a series of snaps from his recent stand-up show.
Riley, 48, assured at the time that she wasn’t upset by the comment and urged people to simply “keep calm and laugh” and despite others continuing to be offended on her behalf, she insisted she loves the Bolton funny man “to pieces”.
Since then, she’s come to his defence on more than one occasion and after attending his live stand-up show at the First Direct Arena in Leeds, she made it clear still as good a pair of friends as ever.
Thanking the 51-year-old for an “absolutely hilarious” show, insisting “we laughed until it hurt”, she said that her family and friends stayed up until “reciting all the jokes”.
In a world, she described the show as “outstanding” and proclaimed it as “Northern at its absolute best.” High praise, indeed, even if it is from one Greater Manchester local to another and entertainment colleagues who know and love each other.
For anyone not clued up on the whole story to begin with, Kay caused a stir amongst some of his fans and the UK comedy crowd after he ejected two members of the audience back in February.
A man was escorted out of the AO Arena for repeatedly shouting his age-old stand-up catchphrase ‘garlic bread’ throughout the gig, another woman used the lapse in the set to shout ‘We love you, Peter!”, which resulted in her also being kicked out of the venue.
An admittedly unfortunate turn set of circumstances given the contrast between the nature of the two outbursts and regardless, the woman in question, Myar Curran, says she was made to feel uncomfortable and believes he was remarking on her weight – something she is already self-conscious about.
In her first TV interview, Myar Curran has told Good Morning Britain, she feels 'humiliated' after she was allegedly kicked out of the comedian Peter Kay's gig on Saturday.@LizSummers has more. pic.twitter.com/HtlHdn39dK
The MailOnline reported at the time that after asking security to remove her on the night, Kay said: “Go on, you’ve missed the ending and everything, what a shame with your f***ing big gob drinking de-icer. Out you go. Go on, Lisa Riley, f*** off. Go on. Out you pop, flower – go on. See ya’.”
In response to the controversy, Kay made a rare public statement explaining his perspective on the incident, staying simply (also to GMB): “I didn’t realise it was an insult. She did look remarkably like Lisa Riley. I didn’t realise that was an insult.”
What do you make of the whole situation; did any of the parties overreact? Does shouting a quick word of support during a break count as a heckle and was it harsh for Peter Kay to kick her out?
Up to 7,000 new homes and a ‘major’ new urban park planned for Strangeways regeneration
Emily Sergeant
Up to 7,000 new homes and a major new urban park are just some of the things proposed for the Strangeways regeneration scheme.
Both Manchester City Council and Salford City Council will be working in collaboration on the ambitious long-term regeneration for the Strangeways and Cambridge areas of the region, and the draft proposals have now been unveiled, outlining the vision that will ‘guide wide-scale investment and development’ across the 130-hectare location over the coming decades.
The draft Strangeways and Cambridge proposals present a ‘high-level vision’ for the area, according to the two Councils.
The plans include up to 7,000 new homes across seven distinct ‘neighbourhood’ areas, many of which will be ‘affordable’, increased commercial floorspace of around 1.75m sqft creating 4,500 jobs, a major new urban park.
The proposals support Manchester’s target to become a zero-carbon city by 2038 and reacts to other environmental factors in the areas.
We are working closely with @SalfordCouncil around the ambitious long term vision for Strangeways and Cambridge.
A public consultation will open soon about the long-term plan for these neighbourhoods.
— Manchester City Council (@ManCityCouncil) March 6, 2025
Crucially, the Councils say the proposals also reflect how HM Prison Manchester – formerly Strangeways Prison – remains a ‘significant barrier to the regeneration ambitions in this part of the city and how they will work with the Ministry of Justice (MoJ) around the ‘long-term future’ of the prison.
A ‘people first’ approach to the regeneration will be prioritised, while the existing architecture and heritage buildings in the area will be celebrated.
“We know this area has challenges, but we also know that there is energy and a community brimming with potential,” commented Bev Craig, who is the leader of Manchester City Council.
“We will deliver huge change in Strangeways in the coming years, working alongside the people who live and work there, and as we move to consultation in the coming weeks, we want to speak to local people and businesses about how we can make this part of the city thrive.”
Salford City Mayor, Paul Dennett, added: “The proposals in the framework seek to identify the best possible options for this area, which include the exciting opportunity to create a new city park for all, with an option for appropriate levels of mixed-use development, to continue to drive sustainable growth.
“I’d urge everyone with a vested interest in this area, whether you’re a resident or business to engage with the consultation process and work with us help shape the future of this part of the city.”
In order to discuss the proposals, Salford Council’s Cabinet will meet on Tuesday 11 March and Manchester’s executives will meet on Friday 14 March.
Emily Sergeant -
10th March 2023 
