A hydrocephalus awareness charity is calling on all UK healthcare providers to help raise awareness of “lifesaving” baby head measurement.
Harry’s Hydrocephalus Awareness Trust (Harry’s HAT) is an organisation that was set up to raise awareness of paediatric hydrocephalus – an incurable, and sadly life-threatening condition that affects one in every 770 babies.
Hydrocephalus is a build-up of excess fluid in the brain, which can put pressure on it to such an extent that it causes damage, and – if left untreated – can be fatal.
Harry’s HAT was set up in 2018 by founder and CEO, Caroline Coates, whose son Harry was first diagnosed with an arachnoid cyst when she was 36-weeks pregnant, that was later confirmed after he was born to have caused hydrocephalus.
Harry’s family were then told he would need a permanent shunt to drain the fluid from his brain at just eight weeks old if he was to survive.
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By the time Harry had reached his first birthday, the youngster had already endured four brain surgeries, and had spent lots of time in hospital, with frequent blue light trips into A&E – while his family found themselves isolated by their lack of knowledge on the condition, and often struggled to access the support and information they needed.
Harry was diagnosed with hydrocephalus shortly after he was born / Credit: Caroline Coates
Harry’s HAT is the only UK charity to focus solely on hydrocephalus and its impact, and the organisation works to make life better for children with hydrocephalus, as well as for those who love and care for them, all year round.
The organisation’s latest campaign, however, may be one of its most crucial yet.
The GET-A-HEAD Campaign is working to spread awareness and highlight the importance of the need for trained health care professionals to measure and record a baby’s head circumference in the first year of life, as this is one of the ways hydrocephalus can be diagnosed.
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Hoping to reach expectant and new parents across the UK, the campaign’s mission is to show why these measurements can be a crucial tool for spotting life-threatening conditions such as hydrocephalus, so that little ones showing signs of the condition will no longer be able to slip through the net.
The campaign was set up after a recent survey by pregnancy and parenting advice forum, Bounty, discovered that only 20% of new parents were aware that measuring a baby’s head can help identify hydrocephalus, and almost half (45%) didn’t know that their baby’s head should even be measured at birth.
Harry’s HAT says “this needs to change”, as research suggests that early diagnosis can help improve the outcome for a baby born with hydrocephalus.
“While there is no cure for the condition, there is treatment,” the charity urges.
The GET-A-HEAD Campaign is working to spread awareness of lifesaving baby head measurement / Credit: Harry’s HAT
Speaking on why the campaign means so much to her, and why it’s so crucial, Caroline Coates – founder and CEO of Harry’s HAT – said: “Harry is my fourth child and I have spent most of my working life working for social care charities, yet even I didn’t know why they measured a baby’s head. I just thought it was something health professionals did and I never considered that it could reveal a life-threatening condition.”
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“Far too many babies are still slipping through the net, and all too often we hear from parents who tell us that chances to spot their child’s hydrocephalus were missed.”
You can support the GET-A-HEAD Campaign and find out more about the work Harry’s HAT does on the charity’s website here.
Featured Image – Harry’s HAT
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Luxury Manchester gym Blok confirms permanent closure after weeks of uncertainty
Daisy Jackson
Blok Manchester has announced its permanent closure, weeks after the doors to the premium fitness facility mysteriously closed.
Around a fortnight ago, members began to arrive to their classes to find the gym on Ducie Street locked up and a forfeiture notice on the door – but at the time, Blok said that it was fighting to reopen.
Sadly, in an email sent to members today, its founder has confirmed that the studio is now permanently closed.
Blok – which has several very successful sites down in London – said that its relationship with its landlord has ‘broken down to a point where trust has been lost’.
The gym wrote that it’s been left with ‘no workable way forward’.
They said: “BLOK Manchester was a space built by our loyal and dedicated community. Whether you joined us for one class or one hundred, we are deeply grateful. You helped create something genuinely special in an incredible city.”
In the immediate future, they said they’ll be supporting the team of fantastic trainers who worked here, as well as looking after members.
Members will be contacted within a few hours with options and refunds owed.
Blok Manchester has announced its permanent closure. Credit: The Manc Group
CEO and founder Ed Stanbury said: “While this marks the end of a chapter, we don’t see it as the end of our story in Manchester. We’re already speaking with developers about potential future sites and remain committed to returning to the city when the time is right.
“Thank you for being part of our story so far. Let’s shape the future of wellness. The mission continues.”
Commenting on Blok’s Instagram post – its first in almost a fortnight – people have been sharing their sadness at the closure of its Manchester site.
One person wrote: “beautiful space, beautiful staff and beautiful community.”
Another said: “Sending love to all the instructors !! :(((( gutted”
Someone else commented: “THE BEST CLASSES. I’m gutted.”
‘The average cost of a pint’ in the UK by region, according to the latest data
Danny Jones
Does it feel like pints keep getting more and more expensive almost every week at this point? Yes. Yes, it does, and while you can’t expect a city as big as Manchester to be one of the cheapest places to get one in the UK, we do often wonder how it compares to other parts of the country.
Well, as it happens, someone has recently crunched the numbers for us across the nation, breaking down which regions pay the most and the least for their pints.
The data has been examined by business management consultancy firm, CGA Strategy, using artificial intelligence and information from the latest Retail Price Index figures to find out what the ‘average cost of a pint’ is down south, up North and everywhere in between.
While the latest statistics provided by the group aren’t granular enough to educate us on Greater Manchester’s pint game exactly, we can show you how our particular geographic region is looking on the leaderboard at the moment.
That’s right, we Mancunians and the rest of the North West are technically joint mid-table when it comes to the lowest average cost of a pint, sharing the places from 3rd to 8th – according to CGA, anyway.
Powered by consumer intelligence company, NIQ (NielsenIQ) – who also use AI and the latest technology to deliver their insights – we can accept it might seem like it’s been a while since you’ve paid that little for a pint, especially in the city centre, but these are the stats they have published.
Don’t shoot the messenger, as they say; unless, of course, they’re trying to rob you blind for a bev. Fortunately, we’ve turned bargain hunting at Manchester bars into a sport at this point.
We might not boast the lowest ‘average’ pint cost in the UK, but we still have some bloody good places to keep drinking affordable.
London tops the charts (pretends to be shocked)
While some of you may have scratched your eyes at the supposed average pint prices here in the North West, it won’t surprise any of you to see that London leads the way when it came to the most expensive pint when it came to average cost in the UK.
To be honest, £5.44 doesn’t just sound cheap but virtually unheard of these days.
CGA has it that the average cost of a beer in the British capital is actually down 15p from its price last September, but as we all know, paying upwards of £7 for a pint down that end of the country is pretty much par for the course the closer you get to London.
Yet more reason you can be glad you live around here, eh? And in case you thought you were leaving this article with very little, think again…
Emily Sergeant -
10th March 2023 
