A hydrocephalus awareness charity is calling on all UK healthcare providers to help raise awareness of “lifesaving” baby head measurement.
Harry’s Hydrocephalus Awareness Trust (Harry’s HAT) is an organisation that was set up to raise awareness of paediatric hydrocephalus – an incurable, and sadly life-threatening condition that affects one in every 770 babies.
Hydrocephalus is a build-up of excess fluid in the brain, which can put pressure on it to such an extent that it causes damage, and – if left untreated – can be fatal.
Harry’s HAT was set up in 2018 by founder and CEO, Caroline Coates, whose son Harry was first diagnosed with an arachnoid cyst when she was 36-weeks pregnant, that was later confirmed after he was born to have caused hydrocephalus.
Harry’s family were then told he would need a permanent shunt to drain the fluid from his brain at just eight weeks old if he was to survive.
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By the time Harry had reached his first birthday, the youngster had already endured four brain surgeries, and had spent lots of time in hospital, with frequent blue light trips into A&E – while his family found themselves isolated by their lack of knowledge on the condition, and often struggled to access the support and information they needed.
Harry was diagnosed with hydrocephalus shortly after he was born / Credit: Caroline Coates
Harry’s HAT is the only UK charity to focus solely on hydrocephalus and its impact, and the organisation works to make life better for children with hydrocephalus, as well as for those who love and care for them, all year round.
The organisation’s latest campaign, however, may be one of its most crucial yet.
The GET-A-HEAD Campaign is working to spread awareness and highlight the importance of the need for trained health care professionals to measure and record a baby’s head circumference in the first year of life, as this is one of the ways hydrocephalus can be diagnosed.
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Hoping to reach expectant and new parents across the UK, the campaign’s mission is to show why these measurements can be a crucial tool for spotting life-threatening conditions such as hydrocephalus, so that little ones showing signs of the condition will no longer be able to slip through the net.
The campaign was set up after a recent survey by pregnancy and parenting advice forum, Bounty, discovered that only 20% of new parents were aware that measuring a baby’s head can help identify hydrocephalus, and almost half (45%) didn’t know that their baby’s head should even be measured at birth.
Harry’s HAT says “this needs to change”, as research suggests that early diagnosis can help improve the outcome for a baby born with hydrocephalus.
“While there is no cure for the condition, there is treatment,” the charity urges.
The GET-A-HEAD Campaign is working to spread awareness of lifesaving baby head measurement / Credit: Harry’s HAT
Speaking on why the campaign means so much to her, and why it’s so crucial, Caroline Coates – founder and CEO of Harry’s HAT – said: “Harry is my fourth child and I have spent most of my working life working for social care charities, yet even I didn’t know why they measured a baby’s head. I just thought it was something health professionals did and I never considered that it could reveal a life-threatening condition.”
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“Far too many babies are still slipping through the net, and all too often we hear from parents who tell us that chances to spot their child’s hydrocephalus were missed.”
You can support the GET-A-HEAD Campaign and find out more about the work Harry’s HAT does on the charity’s website here.
Featured Image – Harry’s HAT
News
Manchester locals appealing for more information over a month after from finding family member’s body
Danny Jones
A Greater Manchester family are still calling for more information now over a month on from the discovery of a man’s body at his Chorlton home.
William Riddell, 49, was found dead in the bedroom of a property on Astbury Avenue at approximately 11:35pm on Sunday, 10 November after being found by his stepdaughter, Sarah Hayden.
Details surrounding his passing are still scarce but a 47-year-old man was arrested on suspicion of murder but has since been released on bail “pending further enquiries”, leaving Sarah and the rest of her family still none the wiser as to the exact nature of his death.
Preparing to spend their first Christmas without him, they have issued a desperate appeal for more information, urging anyone who might have information to come forward.
#APPEAL | The family of a man who died last month are appealing to the public for information as they face their first Christmas without him.
Billy Riddell was sadly found dead at his property in Manchester, with enquiries continuing.
Riddell, more commonly known as Billy by those close to him, was described as a “good, caring man with a big heart” and a popular figure in the local area.
Speaking via Greater Manchester Police, Sarah, said: “I want to be Billy’s voice and get answers for him. Billy was a nice and lovely man and all the community knew who he was. He was well-liked and we gave him a good send-off at his funeral.
“I would just ask anyone who knew him or has any information to come forward and tell police. Even if you think it’s a little or small thing – please come forward. We just want to get to the bottom of what has happened.”
Detective Inspector Alex Wilkinson, who serves on GMP‘s Major Incident Team, added in an official statement: “The family of Billy deserve answers following his death and we are working hard to ensure they get exactly that.
“We have closely supported Sarah and the wider family over the last month, and we will continue to provide assistance wherever we can as they face their first Christmas without him.
“While a suspect has been bailed, we are still working flat-out to understand more about Billy’s life, the people he was close to, and events leading up to his death just over a month ago.”
With that in mind, both GMP and Riddell’s family are asking anyone who might know anything or have information regarding people associated with Billy to come forward, reiterating that “even if you consider something to be small – your help could greatly benefit our investigation.”
You can contact police via 101 or by using the live chat function HERE, quoting log 3227 of 10/11/24.
Alternatively, you can contact the UK’s independent charity, Crimestoppers, anonymously on 0800 555 111 or online.
Government aims to ‘turn the tide’ on homelessness with £1 billion funding boost
Emily Sergeant
Nearly £1 billion of funding is being pumped into Council budgets to help “break the cycle of spiralling homelessness” in 2025.
As part of the Government‘s wider ‘Plan For Change’, and in a bid to help tackle, reduce, and prevent homelessness next year, it’s been announced that more resources will be be made available for workers on the frontline who provide essential services to get rough sleepers off the street and into secure housing.
This significant investment means Councils will now be “better equipped” to step in early and stop households from becoming homeless in the first place.
According to the Government’s plans, these funded measures will include mediation with landlords or families to prevent evictions, helping homeless people find new homes, and providing deposits to access private renting.
This government is determined to tackle, reduce and prevent homelessness.
— Ministry of Housing, Communities & Local Gov (@mhclg) December 18, 2024
The funding will also be used to address the growing use of B&Bs and nightly-let accommodation, and the streamlining of funding structures to make it easier for Councils to spend their cash.
Areas across the UK can also choose to channel resources into services such as Housing First.
Housing First has been massively successful in Greater Manchester, and has helped house hundreds of our region’s rough sleepers since it was first piloted, being described as “life-changing” along the way.
More than £633 million of the funding will be allocated for the Homelessness Prevention Grant – which is a £192 million increase from this year – while £185.6 million will go to the Rough Sleeping Prevention and Recovery Grant, more than £37 million to the Rough Sleeping Accommodation Programme, and £5 million will be for the Emergency Accommodation Reduction Pilots.
This new £1 billion funding boost comes after it was announced back in September that Section 21 ‘no fault’ evictions will be abolished in England next year as part of the landmark Renters’ Rights Bill.
It will also look to support the Government’s ambition to deliver the biggest increase in social and affordable housing in a generation – with an extra £500 million ploughed into the Affordable Homes Programme to build tens of thousands of affordable homes across the country.
Emily Sergeant -
10th March 2023 
