A hydrocephalus awareness charity is calling on all UK healthcare providers to help raise awareness of “lifesaving” baby head measurement.
Harry’s Hydrocephalus Awareness Trust (Harry’s HAT) is an organisation that was set up to raise awareness of paediatric hydrocephalus – an incurable, and sadly life-threatening condition that affects one in every 770 babies.
Hydrocephalus is a build-up of excess fluid in the brain, which can put pressure on it to such an extent that it causes damage, and – if left untreated – can be fatal.
Harry’s HAT was set up in 2018 by founder and CEO, Caroline Coates, whose son Harry was first diagnosed with an arachnoid cyst when she was 36-weeks pregnant, that was later confirmed after he was born to have caused hydrocephalus.
Harry’s family were then told he would need a permanent shunt to drain the fluid from his brain at just eight weeks old if he was to survive.
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By the time Harry had reached his first birthday, the youngster had already endured four brain surgeries, and had spent lots of time in hospital, with frequent blue light trips into A&E – while his family found themselves isolated by their lack of knowledge on the condition, and often struggled to access the support and information they needed.
Harry was diagnosed with hydrocephalus shortly after he was born / Credit: Caroline Coates
Harry’s HAT is the only UK charity to focus solely on hydrocephalus and its impact, and the organisation works to make life better for children with hydrocephalus, as well as for those who love and care for them, all year round.
The organisation’s latest campaign, however, may be one of its most crucial yet.
The GET-A-HEAD Campaign is working to spread awareness and highlight the importance of the need for trained health care professionals to measure and record a baby’s head circumference in the first year of life, as this is one of the ways hydrocephalus can be diagnosed.
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Hoping to reach expectant and new parents across the UK, the campaign’s mission is to show why these measurements can be a crucial tool for spotting life-threatening conditions such as hydrocephalus, so that little ones showing signs of the condition will no longer be able to slip through the net.
The campaign was set up after a recent survey by pregnancy and parenting advice forum, Bounty, discovered that only 20% of new parents were aware that measuring a baby’s head can help identify hydrocephalus, and almost half (45%) didn’t know that their baby’s head should even be measured at birth.
Harry’s HAT says “this needs to change”, as research suggests that early diagnosis can help improve the outcome for a baby born with hydrocephalus.
“While there is no cure for the condition, there is treatment,” the charity urges.
The GET-A-HEAD Campaign is working to spread awareness of lifesaving baby head measurement / Credit: Harry’s HAT
Speaking on why the campaign means so much to her, and why it’s so crucial, Caroline Coates – founder and CEO of Harry’s HAT – said: “Harry is my fourth child and I have spent most of my working life working for social care charities, yet even I didn’t know why they measured a baby’s head. I just thought it was something health professionals did and I never considered that it could reveal a life-threatening condition.”
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“Far too many babies are still slipping through the net, and all too often we hear from parents who tell us that chances to spot their child’s hydrocephalus were missed.”
You can support the GET-A-HEAD Campaign and find out more about the work Harry’s HAT does on the charity’s website here.
Featured Image – Harry’s HAT
News
Greater Manchester officially launches five-year climate change action plan
Danny Jones
Greater Manchester has officially begun its five-year climate change action plan, with the overarching goal of becoming a net-zero city region by 2038.
The comprehensive pledge put together over a number of years itself will see Manchester City Council and the nearby local authorities put into action a number of key measures that will help to reduce not only central carbon figures but, eventually, across the 10 boroughs in turn.
Over the last 15 years, emissions have been reduced by approximately 64%, saving an estimated 44,344 tonnes of carbon through cleaner building energy, street lighting and other electronics, as well as the increasingly green and over-growing Bee Network.
They have also insisted that it isn’t just about cutting down on greenhouse gases; the aim is to make the city region and the surrounding areas more sustainable, affordable and create a better standard of life.
Our five-year plan to tackle climate change launches today. 🌏
It details how we’ll continue to deliver dramatic reductions in the amount of carbon we emit (the biggest contributor to climate change). 🏙️
As per the summary on the Council website, in addition to creating more efficient homes, they’re hoping to provide more access to nature and good-quality green space, “public transport you can rely on”, and “better health and wellbeing for those who live, work, study and visit here.”
With a steadily recovering local and national economy (touch wood), they’re also hoping for an influx of new jobs, too.
Summarising the key bullet points leading up to the end of the decade, these are the next steps currently outlined by the Council:
Lower carbon emissions
Grow the use of renewable energy
Improve low-carbon travel in the city
Improve air quality
Grow the city’s natural environment and boost biodiversity
Improve resilience to flooding and extreme heat
Engage and involve our workforce and our city’s communities
Reduce waste and grow reuse, repair, sharing and recycling
Support a move to a more circular economy
Minimise the negative impact of events held in the city
Develop our knowledge of our indirect emissions and lower them
Create a green financing strategy and explore new funding models for the city
Influence the environmental practices of other organisations
As for emissions, the target is now to drop the present output by another 34%, which will prevent almost 43,000 tonnes of carbon dioxide (CO₂) from being pumped into the atmosphere.
Having touched upon the continued expansion of the Bee Network infrastructure, Transport for Greater Manchester (TfGM) is also set to install multiple new travel links over the coming years, including both new tram stops and train stations – further
You can read the climate action plan in full HERE.
Manchester’s firework displays are ‘back with a bang’ as they return from 2026
Emily Sergeant
Council-organised firework displays in Manchester’s parks are set to return from next year, it has been confirmed.
You may remember that these once-popular events have not been held since 2019, as the COVID-19 pandemic initially prevented them from taking place from 2020 onwards, and then following that, they remained paused on a trial basis while the Manchester City Council sought to ‘reprioritise funding’ to support a wider range of free community events across the city.
But now, as it seems, the door was never shut on their potential return.
An ‘improved financial position’ now means that the Council is in a position to bring firework events back, while also still continuing to support other community events.
Papers setting out the Council’s financial position show that fairer funding being introduced by the Government next year will leave the Council better off than previously anticipated, he the reason firework displays have been brought back into the mix.
The Council has admitted that ‘pressures remain’ after so many years of financial cuts, but this new funding creates the opportunity to invest in the things residents have said matter the most to them.
“Manchester prides itself on free community events and we know many people have missed Bonfire night firework spectaculars,” commented Cllr Bev Craig, who is the Leader of Manchester City Council.
“That’s why we are pleased to confirm they’ll be back by popular demand in 2026.
“We know that generations of Mancunians have enjoyed Council-organised displays and that free family events are a great way to bring people together… [and] now that this Government is actually investing in Councils like ours rather than the cuts we had since 2010, we can bring back Bonfire events.”
Emily Sergeant -
10th March 2023 
